The following health research and reports were developed by NCPIE and are now part of the BeMedWise Program at NeedyMeds. The BeMedWise Program collaborates with partners on medical research and surveys to understand consumer and healthcare provider perspectives on health issues and to generate recommendations to improve medicine communications. This research and publications include:

Research

• Self-Care In Today’s Changing Healthcare Environment: A National Self-Care Survey(2015)
  NCPIE’s National Self-Care Survey captured prevailing perceptions, behaviors and trends among consumers and healthcare providers in today’s changing healthcare environment. The Ipsos survey of 2,024 U.S. adults and 516 physicians demonstrated that Americans today have a growing desire to manage their own health and take on important decisions personally and for their loved ones. In addition to working with healthcare professionals, individuals are actively seeking ways to treat, diagnose, and manage their health conditions and want the information and tools to do it better. 
  
  Learn more about the self-care survey findings:
  • Key findings fact sheet
  • Survey results infographic 
  • Press release 
  • What is your self-care persona? 
  • Webinar presentation of survey results

• A Dose of Reality: Attitudes and Beliefs About the Use of Over-the-Counter Medicines—A National Survey of American Consumers and Health Professionals (2002)
  NCPIE commissioned a comprehensive survey to track the opinions influencing the self-medicating behaviors of the American public. Conducted by Harris Interactive in 2001, the survey consisted of two complementary polls: one of 1,011 adult Americans, and the other involving 451 pharmacists, nurses and general practice physicians. By comparing the attitudes and beliefs of the general public with health practitioners, the survey identified the areas where education about OTC use was most needed. Following the standardization of the OTC “Drug Facts Label” in 2002, NCPIE commissioned a follow-on survey in 2003 to gain insights on consumers awareness of and use of the OTC Drug Facts Label.
  • Executive summary 
  • Survey report
  • Executive summary of 2003 follow-up survey on use of the Drug Facts Label 

Reports 

• Empowering Americans to Take Greater Responsibility for Their Health: A Roadmap for Building a National Self-Care Movement in the U.S. (2018) This report is a result of input provided by a panel of experts representing various stakeholder perspectives, and outlines six national priorities as they pertain to self-care and health literacy.
  
  Find out more about the report, six national priorities and resources by clicking here and links below:
  • Message from BeMedWise
  • Executive Summary
  • Press Release

• Accelerating Progress in Prescription Medicine Adherence: The Adherence Action Agenda (2013) 
  In 2013, NCPIE launched the Adherence Action Agenda (the “A3 Project”) bringing together almost two dozen professional societies, consumer and patient groups, voluntary health organizations, government agencies and industry leaders to identify the major gaps in current medication adherence efforts and create a collaborative national Adherence Action Agenda.
  
  Issued as a nationwide call to action, the A3 report demonstrates how poor medicine adherence among patients with chronic and comorbid conditions results in unnecessary disease progression, disease complications and the increased use of expensive components of health care, such as emergency room visits, hospitalizations, avoidable hospital re-admissions and post-acute care. The report includes a ten-step Adherence Action Agenda that places the spotlight on the pervasive and costly problem of poor medicine adherence.
  
  Learn more about the Adherence Action Agenda’s findings and recommendations:
  • Adherence Action Agenda (A3) report 
  • Fact sheet: The challenge of medicine adherence and the cost of multiple chronic conditions 
  • Fact sheet: Poor Medicine Adherence—The Nation’s “Other Drug Problem” 

• Enhancing Prescription Medicine Adherence: A National Action Plan(2007)
  A comprehensive review of the extent of poor medicine adherence, its health and economic costs, and its underlying factors. The report includes an examination of the current state of research funding and educational initiatives around patient adherence to determine where major gaps still exist. Included are 10 action steps that can significantly impact medication adherence.
  • Full report 

• Children and America’s Other Drug Problem: Guidelines for Improving Prescription Medicine Use Among Children and Teenagers (1989)
  • Full report 

• Priorities & Approaches for Improving Prescription Medicine Use by Older Adults (1987)
  • Full report

Abstracts at Medical Meetings and Conferences

The following research presentations are based from the NCPIE-commissioned consumer and healthcare professional survey research, Knowledge, Attitudes & Behaviors Concerning Risk & Safety Information of Medicines: A Survey of Patients and HCPs in the U.S.*

October 2016
International Society for Pharmacoeconomics and Outcomes Research (ISPOR) 19th Annual European Congress

1. Use of Electronic Health Information Systems (EHIS) by Healthcare professionals (HCPs) and the Perception of its Value in Reducing Medication Risks and Safety for Patients.
2. Receipt and Delivery of Medication Risk and Safety Information: Perceptions of Consumers and Healthcare Professionals (HCPs) in the U.S.
3. Consumer Perception of Communication with Healthcare Professionals (HCPs) and Information Clarity Concerning Newly Prescribed Medication.
4. Use of Internet and Reliability of Information Obtained Online Concerning Medication Risk/Safety: Perceptions of Consumers in the U.S.
5. Medication Safety Warnings: Awareness, Source and Actions of Consumers in the U.S.

September 2016
European Association for Health Care 14th International Conference on Communication in Healthcare

• presented by Debra Roter, DrPH, Professor, Johns Hopkins Bloomberg School of Public Health, Department of Health, Behavior and Society.

August 2015
31st International Conference on Pharmacoepidemiology and Therapeutic Risk Management.

• “Awareness of Medication Safety Warnings: Results from a Survey of Patients and Caregivers in the U.S.” presented by Siva Narayanan, Evidence Generation, Value and Access COE, Ipsos Healthcare, Washington, DC.
   
• “Perceptions about Medication Safety Warnings and Communication with Patients: Results from a Survey of Healthcare Providers in the U.S.” presented by G. Caleb Alexander, M.D., MS, Associate Professor of Epidemiology and Medicine, Johns Hopkins School of Medicine and Co-Director, Center for Drug Safety and Effectiveness, Bloomberg School of Public Health, Baltimore, MD.

October 2016
International Society for Pharmacoeconomics and Outcomes Research (ISPOR) 19th Annual European Congress.

*The research program “Knowledge, Attitudes & Behaviors Concerning Risk & Safety Information of Medicines: A Survey of Patients and HCPs in the U.S.” was conducted by the Evidence Generation, Value and Access Center of Excellence within Ipsos Healthcare, with input from the U.S. Food and Drug Administration (FDA) and the Center for Drug Safety and Effectiveness (CDSE), Johns Hopkins Bloomberg School of Public Health.

The research was supported by the U.S. Food and Drug Administration, Center for Drug Evaluation and Research under grant number 5U18FD004653-03. The content is solely the responsibility of NCPIE and does not necessarily represent the official views of the Food and Drug Administration.